Skip to content

Support Groups

SUPPORT GROUPS of The MOG Project

We offer a variety of support groups for our MOGAD Community. Support groups help us connect to others who have similar experiences.  So many find comfort in simply sharing their overall journeys as well as offering insight into many aspects of managing their health including how they solved problems getting the right treatment to stabilize their disease, the best way to navigate insurance and how to choose the right doctor, just to mention a few.

We offer a variety of support groups and support programs – all virtual through Zoom. Join one today!

What we offer

The MOG Project logo: Wings of Hope Lill' Hummingbird Nest, Support Program for Parents and caregivers with MOGAD. Hosted by Dawn and Brian Groves. Picture of a hummingbird on a nest.

Led by our Support Group Leaders, Dawn and Brian Groves, this hybrid program is designed to educate and share experiences between parents and caregivers of kids with MOGAD.

This is a wonderful way to connect with other parents and caregivers of our little Moggies!

As of March 2023, in order to better accommodate the busy schedules of families, Brian and Dawn have put together a two-part program for parents:

  1. A Peer-2-Peer Support System that provides parents, in need of one-on-one support on their own timetable, individual mentoring by pairing them with another parent or caregiver of a child with MOGAD.
  2. Four times a year, there will be a Q&A Zoom event with a guest appearance by one of our experts in pediatric MOGAD! During the special support group event, our expert will answer questions for parents. The second part of the meeting will be an open discussion among the attendees.  You must register to attend.

To connect to a Peer-2-Peer Support Group Member, please email:

lilhummingbirdnest@mogproject.org

Stay tuned for our next special event!

In late September 2023, Lana Harder, PhD, ABPP joined us for a Special Q&A Event!  She presented on neuropsychology in MOGAD and then did a 1 hour Q&A session. To protect the privacy of our attendees, only the presentation was recorded and is shown below.

Lana Harder, PhD, ABPP

Lana Harder, PhD, ABPP

Dr. Harder earned her doctorate from the University of Texas at Austin and completed her pre-doctoral internship at the Kennedy Krieger Institute and Johns Hopkins School of Medicine.  She completed post-doctoral fellowship at Texas Children’s Hospital and Baylor College of Medicine.  Dr. Harder has served as a Pediatric Neuropsychologist at Children’s Medical Center since 2008.  In 2009, she was a founding member and is the current Co-Director of the Children’s Medical Center Pediatric Demyelinating Diseases Clinic. Inspired by her work evaluating children with rare disorders, Dr. Harder published the first study on pediatric tele-neuropsychology. Her research interests include brain imaging correlates of neuropsychological functioning in demyelinating disorders including pediatric MOG antibody associated disease (MOGAD), transverse myelitis, acute disseminated encephalomyelitis, neuromyelitis optica, and multiple sclerosis. Dr. Harder also participates in a multi-site longitudinal investigation on the impact of cancer and its treatment on early development in infants and toddlers.

Dr. Harder leads the Neuropsychology Service and Neuropsychology training program at Children’s Medical Center. She holds dual faculty appointments as Professor of Psychiatry and Neurology at UT Southwestern. Dr. Harder is board certified in Clinical Neuropsychology and is a board certified Subspecialist in Pediatric Neuropsychology. Nationally, Dr. Harder was elected President-Elect of the Association of Postdoctoral Programs in Clinical Neuropsychology (APPCN). She has served on the Board of Directors of the American Board of Clinical Neuropsychology and two consecutive terms on the Board of Directors of APPCN. Dr. Harder serves on the Board of Directors and Medical and Scientific Council of the Siegel Rare Neuroimmune Association. Dr. Harder is a fellow of the National Academy of Neuropsychology.

Wings of Hope Presents Lifting The MOG Fog: A support group for young adult MOGAD patients 18-30. Hosted by Kevin Jaffe and Scott Tarpey via Zoom. There is an image of a humminbird at a flower in a misshaped square on the right. There is a gradient pink background and The MOG Project logo in black is in the upper left-hand corner.

Formerly hosted by our Support Group Leader Becca Salky, this US-based support group meeting held virtually over Zoom is open to patients 18-30 years of age. In 2024, Becca turned over the group to two of our under 30 leaders, Kevin Jaffe and Scott Tarpey.

May 6, 2024 at 4:45 PM EST

Join us for this recurring meeting the first Monday of each month in the evening at 4:45 PM Eastern Standard Time.

This virtual meeting over Zoom is a great place to get together and talk about the issues that younger adults face, leaning on each other for support.

Since this meeting is a monthly recurring meeting, you will need to register only once using the REGISTER button below.

Save the link for future meetings.  If you want to be removed from the reminder list, just let us know at info@mogproject.org

NOTE: As of January 1, 2024, all need to register for a new session.  Please follow the link below:

Hosted by our MOG Squad members: Executive Director Julia Lefelar and Director of Blind Resources Andrea Mitchell.  As all of our meetings, this is held virtually over Zoom, and this US-based support group meeting is open to patients 18+ years of age globally.by 

April 16, 2024 at 7:00 PM EST

Join us for this recurring meeting every third Tuesday evening of the month at 7:45 PM Eastern Time!

This virtual meeting over Zoom is a great place to get together and navigate through everything MOGAD together.

Since this meeting is a monthly recurring meeting, you will need to register only once using the REGISTER button below.

Save the link for future meetings.  Keep the link to jump into each meeting whenever you can!  If you lose the link, we will email a reminder prior to the next meeting.  If you want to be removed from the reminder list, just let us know at info@mogproject.org

NOTE: As of January 1, 2024, all need to register for a new session.  Please follow the link below:

Wings of Hope presents The MOGnificent Employee, a support group for working adult patients with MOGAD. Hosted by Kasha Jenkins via Zoom. Teal background with a hummingbird at a flower in the circle. The MOG Project logo is in the upper right-hand corner.

Hosted by Kasha Jenkins who provides a group discussion on working with this rare neuroimmune disorder. This is  great forum to exchange ideas on how to manage the disease and make a living. As all of our meetings, this is held virtually over Zoom, and this US-based support group meeting is open to patients 18+ years of age globally.

March 28, 2024 at 7:00 PM EST

Join us for this recurring meeting the last Thursday evening of the month at 7:00 PM Eastern Time!

This virtual meeting over Zoom is a great place to get together and navigate together through everything dealing with trying to work with MOGAD.

Since this meeting is a monthly recurring meeting, you will need to register only once using the REGISTER button below.

Save the link for future meetings.  Keep the link to jump into each meeting whenever you can!  If you lose the link, we will email a reminder prior to the next meeting.  If you want to be removed from the reminder list, just let us know at info@mogproject.org

Don't see a group that might be a good fit for you?
Consider starting your own by contacting us at info@mogproject.org.