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Ignition Survey #2: Fatigue

The MOG Project is pleased to share results from our second Ignition Survey! This survey included 187 MOGAD patients and caregivers as well as 62 members of their households.  They were asked a range of questions regarding surrounding their experience with fatigue. We developed this with the help of Dr. Elias Sotirchos.
 
It is important to note that due to recruiting methodology, this respondent pool may skew towards patients with more severe cases of MOGAD.
Ignition survey results: Fatigue in Mogad
Demographics of respondents
Median modified fatigue impact scale score of respondents
Diagnosis of MOG antibody disease
CNS presentations of respondents with MOGAD
Treatments currently being used for MOGAD in this group
Responses to fatigue by physician
other medical diagnosis
Have you been diagnosed with any of the following conditions
Fatigue experiences in MOGAD respondents
Current fatigue outcomes vs treatment in MOG Respondents
Fatigue and MOGAD relapses
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sleep patterns and difficulties
Fatigue and sleep
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Overall statistics of the MS subscale score and modified fatigue impact scale score
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Publications and Posters

With the help of Johns Hopkins Medicine and the team led by Dr. Elias Sotirchos and Dimetrios Ladakis, the results were analyzed further to produce a poster and a publication based on the results.  The poster was made available at ECTRIMS 2022 in Amsterdam, The Netherlands.  The paper was published by Sage and available in the Multiple Sclerosis Journal – Experimental, Translational Clinical.  You can view the publication here and download it below:

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ECTRIMS 2022: Post presentatioN

Below is the poster presented at ECTRIMS 2022 in Amsterdam, The Netherlands.  For a downloadable PDF, select the image.