Connect with the MOGAD Community
Making connections to resources and fellow MOGAD community members helps to empower you to ensure you are armed with enough knowledge to advocate for yourself and make the best decisions you can with the help of your medical professional. Through our efforts and those of our partners, we are dedicated to provide the platforms that facilitates making those important connections.
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Virtual Zoom-Based Support Groups
We offer virtual support groups for both adults and parents of kids globally with MOGAD through Zoom. Our meetings are announced on social media, but the best way to keep abreast of upcoming meetings is to register for our email list below. Visit our Support Groups page to register for one of our next scheduled meetings!
Facebook Private Support Groups
These groups are run and managed by The MOG Project and provide a forum to connect with other patients if you need support or want to talk about what is on your mind inbetween the monthly group meetings. It’s a great way to meet others globally with the disease and run your ideas and concerns past others based on your experience. As always, we keep your posts and membership in these groups private, offer no medical advice but only patient experience and support and do not allow individual fundraising.
These are the only approved groups by The MOG Project. Please beware as some public groups has popped up: THEY ARE NOT PRIVATE so please stay with these or check to make sure your membership and posts in those groups are not public
- MOG Antibody / Anti MOG Support and Info Facebook Group. Here those with MOGAD provide support and information about their experience. This group is private only to those who have MOGAD and their caregivers and close relatives.
- MOG/NMOSD Support for Young Adults is a Facebook group for young adults 18-20. It is managed by Becca Salky, Kevin Jaffe and Scott Tarpey our Wings of Hope Lifting the MOG Fog zoom support group leaders.
- Adults with MOG Antibody Disease (MOGAD) Zoom Support Group is a Facebook group for adults of any age (18+). It is managed by Julia Lefelar and Andrea Mitchell who run the Wings of Hope, MOG Sloggers: Finding our Way Together zoom support group.
- Support for Parents and Caregivers of Kids with MOGAD is a Facebook group for parents and caregivers of kids with MOGAD. It is managed by Dawn and Brian Groves who run the Wings of Hope, Lil’ Hummingbird Nest zoom support group.
- UK MOG Antibody Disease Support run by Scott Tarpey is for all connected to MOGAD disease in the UK, whether they are patients, parents or caregivers.