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Press & Media

The MOG Project is a 501(c)3 organization founded in 2018 by Julia Lefelar, Amy Ednie, Kristina Lefelar and Cynthia Albright after Julia and Cynthia were diagnosed.  We are devoted to advocating for those diagnosed with MOG Antibody Disease (MOGAD) globally. We raise awareness, provide education, collaborate with researchers, fundraise and provide support for our community in hopes of finding a cure. We offer disease information in the form of easy to understand infographics, written materials and videos, and provide support groups to bring together those who are in need of community experience.  We have created a patient-led network, bridging the gap between patients and medical professionals by connecting patients, doctors, researchers and pharma with the purpose of gaining understanding of this new frontier in neuroimmunology.

Print Press

PR Newswire, Eileen Coyne, The MOG Project, February 15, 2022

In February of 2022, The MOG Project marked Rare Disease Day 2022 with a call for all rare disease patients to participate in patient registries.

Read the full article here.

Washington Post, Medical Mysteries, Sandra Boodman, January 15, 2022

In December of 2021, Julia Lefelar, Co-Founder and Executive Director of The MOG Project, met with Sandra Boodman, Medical Mysteries columnist at the The Washington Post to learn more about Julia’s long journey to a diagnosis of MOG-AD. Sandra Boodman also talked with Dr. Michael Levy, one of our medical board advisors who made the diagnosis for Julia. The result was the story of a 17-year journey to finding out what was ailing her.  This is the story behind the motivation for The MOG Project.

Read the full article here.

Washington Post

Press Release, November 19, 2021

Read this press release from Kimball Hughes Public Relations on our recent auction, hosted by Unicorn Auctions our of Chicago for a visit and tasting experience to the famous and historic Buffalo Trace Distillery in Frankfort, Kentucky.  The winner was able to choose one Blanton’s Single Barrel bourbon whiskey and experience a VIP tour of the historic distillery. 

Read the full story here:

Charity Auction Aims to Put MOG-AD Disease Over a Barrel

Broadcast Radio and Television

Handi-Link, CJAM Radio, Windsor Ontario, Canada, April 29, 2022

Handi-Link, hosted by Cam Wells, is an information program about issues surrounding people with disabilities.  Cam interviewed our Executive Director, Julia Lefelar, about the work that she does for The MOG Project.

Listen to the interview here.

RNIB Connect Radio, United Kingdom, February 16, 2022

RNIB Connect Radio part of the Royal National Institute of Blind People in the United Kingdom and is Europe’s first radio station broadcasting with the blind and partially sighted listener in mind. They sat down with our Executive Director, Julia Lefelar, for this interview about The MOG Project

Listen to the interview here.

NBC4 News, Washington DC, November 26-27, 2021

Being from the Washington DC metropolitan area, The MOG Project was highlighted on the local NBC affiliate, NBC4 DC in order to tell the story of our Rare Whiskey 4 Rare Disease auction of a huge barrel of Blanton’s Whiskey and VIP tour of the historic Buffalo Trace Distillery in Frankfort, Kentucky.

Read about it and watch the two broadcasts in our MOG Blog titled The MOG Project Makes an Appearance on NBC4 Washington DC.

For press inquiries contact our Chief Media Officer, Jim Broutman: