Support Groups

We offer a variety of support groups for our MOGAD Community. Support groups help us connect to others who have similar experiences. So many find comfort in simply sharing their overall journeys as well as offering insight into many aspects of managing their health including how they solved problems getting the right treatment to stabilize their disease, the best way to navigate insurance and how to choose the right doctor, just to mention a few.
We offer a variety of support groups and support programs – all virtual through Zoom. Join one today!
What we offer

Led by our Support Group Leaders, Dawn and Brian Groves, this hybrid program is designed to educate and share experiences between parents and caregivers of kids with MOGAD.
This is a wonderful way to connect with other parents and caregivers of our little Moggies!
As of March 2023, in order to better accommodate the busy schedules of families, Brian and Dawn have put together a two-part program for parents:
- A Peer-2-Peer Support System that provides parents, in need of one-on-one support on their own timetable, individual mentoring by pairing them with another parent or caregiver of a child with MOGAD.
- Four times a year, there will be a Q&A Zoom event with a guest appearance by one of our experts in pediatric MOGAD! During the special support group event, our expert will answer questions for parents. The second part of the meeting will be an open discussion among the attendees. You must register to attend.
The next Q&A Zoom Meeting with be on April 13th, 2023 at 7:30 PM Eastern Time (US and Canada)

Hosted by our Support Group Leader Becca Salky, this US-based support group meeting held virtually over Zoom is open to patients 18-30 years of age.
April 3, 2023 at 5:45 PM Eastern Time (US and Canada)
Join us for this recurring meeting the first Monday of each month in the evening at 5:45 PM Eastern Standard Time (US and Canada)!
This virtual meeting over Zoom is a great place to get together and talk about the issues that younger adults face, leaning on each other for support.
Since this meeting is a monthly recurring meeting, you will need to register only once using the REGISTER button below.
Save the link for future meetings. If you want to be removed from the reminder list, just let us know at info@mogproject.org

Hosted our MOG Squad, members: Executive Director Julia Lefelar and Director of Blind Resources Andrea Mitchell. As all of our meetings, this is held virtually over Zoom, and this US-based support group meeting is open to patients 18+ years of age globally.
March 21, 2022 at 7:00 PM Eastern Time (US and Canada)
Join us for this recurring meeting every third Tuesday evening of the month at 7:45 PM Easter Time (US and Canada)!
This virtual meeting over Zoom is a great place to get together and navigate through everything MOGAD together.
Since this meeting is a monthly recurring meeting, you will need to register only once using the REGISTER button below.
Save the link for future meetings. Keep the link to jump into each meeting whenever you can! If you lose the link, we will email a reminder prior to the next meeting. If you want to be removed from the reminder list, just let us know at info@mogproject.org
NOTE: As of February, 2023, all need to register for a new session. Please follow the link below: