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Support Groups

SUPPORT GROUPS of The MOG Project

We offer a variety of support groups for our MOGAD Community. Support groups help us connect to others who have similar experiences.  So many find comfort in simply sharing their overall journeys as well as offering insight into many aspects of managing their health including how they solved problems getting the right treatment to stabilize their disease, the best way to navigate insurance and how to choose the right doctor, just to mention a few.

We offer a variety of support groups and support programs – all virtual through Zoom. Join one today!

Support for Parents and Caregivers of MOGAD Kids

The MOG Project logo: Wings of Hope Lill' Hummingbird Nest, Support Program for Parents and caregivers with MOGAD. Hosted by Dawn and Brian Groves. Picture of a hummingbird on a nest.

Led by our Support Group Leaders, Dawn and Brian Groves, this program is designed to educate and share experiences between parents and caregivers of kids with MOGAD.

 

This program is designed as a peer-to-peer support system as part of our MOG Mentor program. It provides parents, in need of one-on-one support on their own timetable, individual mentoring by pairing them with another parent or caregiver of a child with MOGAD.

 

This is a wonderful way to connect with other parents and caregivers of our little Moggies!

Time permitting throughout the year, there may also be a Q&A Zoom event with a guest appearance by one of our experts in pediatric MOGAD! During the special support group event, our expert will answer questions for parents. The second part of the meeting will be an open discussion among the attendees.  You must register to attend.

"Lean into community. There is strength, understanding, and real encouragement in connecting with other families who truly get this journey. Support is the power of community — families showing up for one another with empathy, honesty, and hope."

To connect to a Peer-2-Peer Support Group Member, please email:

lilhummingbirdnest@mogproject.org

In late September 2023, Lana Harder, PhD, ABPP joined us for a Special Q&A Event!  She presented on neuropsychology in MOGAD and then did a 1 hour Q&A session. To protect the privacy of our attendees, only the presentation was recorded and is shown below.

Lana Harder, PhD, ABPP

Lana Harder, PhD, ABPP

Dr. Harder earned her doctorate from the University of Texas at Austin and completed her pre-doctoral internship at the Kennedy Krieger Institute and Johns Hopkins School of Medicine.  She completed post-doctoral fellowship at Texas Children’s Hospital and Baylor College of Medicine.  Dr. Harder has served as a Pediatric Neuropsychologist at Children’s Medical Center since 2008.  In 2009, she was a founding member and is the current Co-Director of the Children’s Medical Center Pediatric Demyelinating Diseases Clinic. Inspired by her work evaluating children with rare disorders, Dr. Harder published the first study on pediatric tele-neuropsychology. Her research interests include brain imaging correlates of neuropsychological functioning in demyelinating disorders including pediatric MOG antibody associated disease (MOGAD), transverse myelitis, acute disseminated encephalomyelitis, neuromyelitis optica, and multiple sclerosis. Dr. Harder also participates in a multi-site longitudinal investigation on the impact of cancer and its treatment on early development in infants and toddlers.

Dr. Harder leads the Neuropsychology Service and Neuropsychology training program at Children’s Medical Center. She holds dual faculty appointments as Professor of Psychiatry and Neurology at UT Southwestern. Dr. Harder is board certified in Clinical Neuropsychology and is a board certified Subspecialist in Pediatric Neuropsychology. Nationally, Dr. Harder was elected President-Elect of the Association of Postdoctoral Programs in Clinical Neuropsychology (APPCN). She has served on the Board of Directors of the American Board of Clinical Neuropsychology and two consecutive terms on the Board of Directors of APPCN. Dr. Harder serves on the Board of Directors and Medical and Scientific Council of the Siegel Rare Neuroimmune Association. Dr. Harder is a fellow of the National Academy of Neuropsychology.

Support for ADULTS of ALL AGES

The MOG Project and MyMyelitis logos are shown in the upper left hand corner. The background is a gradient rose color and there is an odd-shaped square with a hummingbird at a flower shown inside. Wings of Hope presents Lifting the MOG Fog, a support group for adults MOGAD patients hosted by Kevin Jaffe and Scott Tarpey.

This US-based support group meeting held virtually over Zoom is open to adult patients and hosted by Kevin Jaffe and Scott Tarpey.

2026 Meeting Dates: First Wednesday of Each Month at 4:45 PM Eastern

January 7

February 4

March 4

April 1

May 6

June 3

July 1

August 5

September 2

October 7

November 4

December 2

Join us for this recurring meeting the first Wednesday of each month in the evening at 4:45 PM Eastern Standard Time.

This virtual meeting over Zoom is a great place to get together and talk about the issues that younger adults face, leaning on each other for support.

Since this meeting is a monthly recurring meeting, you will need to register only once using the REGISTER button below.

Save the link for future meetings.  If you want to be removed from the reminder list, just let us know at info@mogproject.org

"Don’t underestimate the value of hearing from others who understand what you're going through. MOGAD can feel isolating because it’s rare, but learning and sharing with others is one of the strongest ways to overcome that. Support compliments clinical care. The healthcare professionals help manage the disease and the community helps you manage the experience of living with it."

NOTE: Each year on January 1, all participants will need to register for a new session.  Please follow the link below for the current session:

Dr. Lauren Tardo from UT Southwestern joined us in late September 2024 to answer questions about MOGAD, including the clinical trials going on at her clinic. She presented on MOGAD and then did a 1 hour Q&A session. To protect the privacy of our attendees, only the presentation was recorded and is shown below.

 

Hosted by our MOG Squad members: Executive Director Julia Lefelar and Director of Blind Resources Andrea Mitchell.  As all of our meetings, this is held virtually over Zoom, and this US-based support group meeting is open to patients 18+ years of age globally.

2026 Meeting Dates: Third Tuesday of Each Month at 7 PM Eastern

January 20

February 17

March 17

April 21

May 19

June 16

July 21

August 18

September 15

October 20

November 17

December 15

Join us for this recurring meeting every third Tuesday evening of the month at 7:00 PM Eastern Time!

This virtual meeting over Zoom is a great place to get together and navigate through everything MOGAD together.

Since this meeting is a monthly recurring meeting, you will need to register only once using the REGISTER button below.

Save the link for future meetings.  Keep the link to jump into each meeting whenever you can!  If you lose the link, we will email a reminder prior to the next meeting.  If you want to be removed from the reminder list, just let us know at info@mogproject.org

"Never stop looking for answers. Advocacy work is very important because you'll not only meet others with the disease, but make new friends in the process."

"Support comes in many forms for MOGAD that are needed by patients. While proper support from the medical community for physical well-being is necessary, support in the form of continual peer interaction through a community of people who share a common experience provides the basis for self advocacy and emotional wellness. It builds confidence, softens anxiety, crushes feelings of isolation, and provides hope. It is a vital part of navigating through tough and questionable times brought on by this disease. Therefore, is what I think of when I think of support."

NOTE: Each year on January 1, all participants will need to register for a new session.  Please follow the link below for the current session:

Hosted by Kathy Ferella.  As all of our meetings, this is held virtually over Zoom, and this Australian-based support group meeting is open to patients 18+ years of age living in Australia & New Zealand.

In 2026, the session will start in February. We appreciate your understanding and we hope this does not cause any inconvenience. If you need support in January, we invite you to sign up for another meeting or contact us at info@mogproject.org

2026 Meeting Dates: Third Tuesday of Each Month at 7 PM Melbourne Time

Australia & New Zealnad Support Group. A Support Group for MOGAD patients from Australia & New Zealand. Hosted by Kathy Ferella. Background is pink and there are australia and new zealand flags shown. There is a circle with a hummingbird at a flower in it.

7February 17

March 17

April 21

May 19

June 16

July 21

Aug 18

Sep 15

Oct 20

Nov 17

Dec 15

Join us for this recurring meeting every third Tuesday evening of the month at 7:00 PM Melbourne Time! This virtual meeting over Zoom is a great place for those in Australia & New Zealand to get together and navigate through everything MOGAD together.

Since this meeting is a monthly recurring meeting, you will need to register only once using the REGISTER button below. Save the link for future meetings. Keep the link to jump into each meeting whenever you can!  If you lose the link, we will email a reminder prior to the next meeting. 

If you want to be removed from the reminder list, just let us know at info@mogproject.org

"As someone living with MOGAD and facilitating the Australian & New Zealand MOGAD Support Group each month, I've learned this: we are stronger than the uncertainty. Support isn't about fixing each other. It's about sitting together in the 'in-between,' being heard, and reminding one another that we are not alone."

NOTE: Each year on January 1, all participants will need to register for a new session.  Please follow the link below for the current session:

Graphic has a teal background with darker teal swirling lines. There is a circle on the right with a flying hummingbird. The white colored words show The MOG project logo with a circle containing the Canadian flag to the right of it. Underneath that it says Wings of Hope presents our Canadian MOGAD Support Group. A support group for MOGAD patients from Canada. Hosted by Sandra Jessop via Zoom.

Hosted by Sandra Jessop. As all of our meetings, this is held virtually over Zoom, and this Canadian-based support group meeting is open to all patients living in Canada.

2026 Meeting Dates: Second Wednesday of Each Month at 8 PM Eastern Time Zone

January 14

February 11

March 11

April 8

May 13

June 10

July 8

Aug 12

Sep 9

Oct 14

Nov 11

Dec 9

Join us for this recurring meeting every second Wednesday evening of the month at 8:00 PM Eastern Time! This virtual meeting over Zoom is a great place for those in Canada to get together and navigate through everything MOGAD together. Since this meeting is a monthly recurring meeting, you will need to register only once using the REGISTER button below. Save the link for future meetings. Keep the link to jump into each meeting whenever you can!  If you lose the link, we will email a reminder prior to the next meeting.  If you want to be removed from the reminder list, just let us know at info@mogproject.org

"You might feel like you are on this journey alone, but you are not alone. Reach out and share your story because it makes it easier to go through. Sharing your story doesn't just help you; it helps others as well to realize and understand they are not alone."

NOTE: Each year on January 1, all participants will need to register for a new session.  Please follow the link below for the current session:

A promotional banner for a Spanish-language support group, Compañeros MOG, for adults with MOGAD. It features a hummingbird near a flower and event details, hosted via Zoom by Luz Adriana Hernandez.

Hosted by Luz Adriana Hernandez. As all of our meetings, this is held virtually over Zoom, and this Spanish-language support group meeting is open to all Spanish-speaking patients.

2026 Meeting Dates: Third Sunday of Each Month at 7 PM Eastern Time Zone

April 19

May 17

June 21

July 19

August 16

September 20

October 18

November 15

December 20

Join us for this recurring meeting every third Sunday evening of the month at 7:00 PM Eastern Time! This virtual meeting over Zoom is a great place for Spanish-speaking MOGAD patients to get together and navigate through everything MOGAD together. Since this meeting is a monthly recurring meeting, you will need to register only once using the REGISTER button below. Save the link for future meetings. Keep the link to jump into each meeting whenever you can!  If you lose the link, we will email a reminder prior to the next meeting. If you want to be removed from the reminder list, just let us know at info@mogproject.org

NOTE: Each year on January 1, all participants will need to register for a new session.  Please follow the link below for the current session:

Don't see a group that might be a good fit for you?
Consider starting your own by contacting us at info@mogproject.org.
We are currently looking for Support Group Leaders and it's a great way to connect to the MOGAD Community!