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Angeline’s Story: Navigating Life’s Unexpected Turns

Drawing of a woman with dark hair in a single thick braid in the back, with her back facing us and her head turned so that we see the side of her face. She has a colorful tattoo all o ver her back of swirls and flowers, but the center is a spinal cord with fire in the lower back. New to her head is an image of a brain with electrical bolts all around it. The caption reads, "This is MOG".

This is what my MOGAD Pain Feels like

Amid a thriving career and relentless pursuit of success, life threw me a curveball.  My legs started acting up.  Initially diagnosed with Guillain-Barre syndrome, treatments brought relief, but fatigue lingered.  Fast forward five months, waking up to a burning sensation marked a new chapter.  Weakened legs led to an urgent visit, MRI, and a spinal tap.

The doctor’s concerned expression hinted at something serious—possible Multiple Sclerosis (MS). Waiting for answers for a month, my spinal fluid was sent to the Mayo Clinic, revealing a diagnosis of Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD). Emotions ranged from fear to worry, but adaptation was key. Mourning my old life, changes ensued: career shift, stress reduction, and a move to the serene foothills.
Angeline's two children playing on the floor and laughing.

Developing a positive mindset took time, dealing with pain-induced frustrations and anxieties.  Adjusting to limitations was gradual.  Challenges persist, but strength lies in resilience on this unexpected journey.  Find your new niche, do what makes you happy. 

Remember, you are number one.

By Angeline Newman

Angeline and her husband. She has dark brown hair and glasses and he has lighter hair and a beard, wearing a baseball cap. He is setting next to her with his arm around her neck, resting on her shoulders, pulling her close. They are both smiling.