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Announcements

Announcement

The MOG Project Joins Global Genes Rare Foundation Alliance

Announcing our partnership with Global Genes as a member of their Rare Foundation Alliance! We are now part of a network of over 700 RARE Foundation Alliance members which are committed to collaborating in order to create a stronger collective voice in the rare disease community. Through their resources and the sharing of other alliance member resources as well as our own, participation in Rare Foundation Alliance events and taking advantage of the ability to collaborate with other members, there is no limit to what we can do for this MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   Community! For more information onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. the Global Genes Rare Foundation Alliance, visit the Global Genes Rare Patient Alliance website.

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Announcement

Announcing our new 501(c)3 Status

We are EXCITED to announce that we are OFFICIALLY a 501(c)3 non-profit organization!  2021 is off to an great start for The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project! Fundraising, partnerships, grants, donations…the possibilities are endless. The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project strives to support our mission of providing information, funding research, raising awareness and supporting our MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   community. The future is bright!

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Announcement

Announcing Our New Sponsor: Gina Hessburg

The MOG Project has partnered with Gina Hessburg, an art buyer and producer.  Gina, along with the support of her advertising community, is self-publishing a book called Blowing UP about her life with Rafael.  Blowing Up provides a light-hearted look at life with a rare autoimmuneA disease in which the immune system incorrectly targets and attacks an individual’s own healthy cells. disease.  Gina has dedicated $5 of each book sale to go towards ONInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. research and support.  She has also dedicated 10% of all funds raised to The MOG Project. Read all about Rafael and Gina’s creative project by visiting the Rafael page on our website as well as our our blog about Gina called  Introducing Rafael: A Partnership Story. Follow the links onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. these pages to sign up for her newsletter, and buy a book or two to help the cause.  Feel free to share with a few friends.  Have a laugh and help our community at the same time! Kristina Lefelar | Media Relations | info@mogproject.org

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Announcement

The MOG Project Launches New Website

Welcome to The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project!  The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project is thrilled to officially launch the new website and announce the incorporation of our organization. The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project is onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. a mission to provide MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   patients, doctors and caregivers access to accurate and current disease information, advocate for research, and bring together a compassionate community to share their stories and provide each other much needed support.. The goal is for this platform is to be a point of relief and comfort for the MOG-AD community.  To better understand where to get information and links, take a quick look at the site map:  Resources provides access to five areas of educational materials: Facts & Information Sheets provides links to information onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   from disease information to Fact Sheets for Educators. MOGmentum provides access to the MOGmentum Series, which is a collaborative effort between The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project and The Sumaira Foundation for NMO designed to help better understand this complicated disease. Podcasts provides links to the Podcasts, with our partner, the Siegel Rare Neuroimmune Association (SRNA). For the Blind provides educational materials and links to resources compiled by our Ambassador for the Blind, Andrea Mitchell. Ignition Surveys is a landing place for the results of our Ignition Surveys, which are non-scientific surveys from the ever-growing MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   community designed to ignite areas of study for MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   researchers and pharmaceutical companies. News/Events provides the latest new, announcements and events as well as results and pictures of past events. MOG Blog is a great place to find stories and articles designed to educate, inspire, read about other MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   patient journeys and read about tips onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. living with MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease  . MOG Gear page has all of the best MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Awareness gear. New gear is added periodically to provide new ways to help advocate and raise awareness! Community helps to Connect to the MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   community and Contribute to the MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project mission. Please join the email list or consider becoming a volunteer.  There are many ways to help, so check it out To learn more about The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project and who we are, how we started, and what we want to accomplish, check out the About page! For questions, wanting to get involved, or to contact The MOG Project, please reach out through Contact Us or email us at info@mogproject.org. Kristina Lefelar | Media Relations | info@mogproject.org

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Announcement

The MOG Project Partners with The Siegel Rare Neuroimmune Association

The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project is thrilled to announce our partnership with The Siegel Rare NeuroimmuneA term that refers to the components of the immune system that acts in and affects the central nervous system. Association (SRNA) to advance our shared mission in supporting the MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   community and expanding our knowledge of alike neuroimmuneA term that refers to the components of the immune system that acts in and affects the central nervous system. disorders. In December of 2017, Julia Lefelar, Executive Director of The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project, was suggested by her neurologist, Dr. Michael Levy, MD, PhD, then affiliated with Johns Hopkins University, to join the Siegel Rare NeuroimmuneA term that refers to the components of the immune system that acts in and affects the central nervous system. Association (SRNA) formerly the Transverse MyelitisA disorder caused by inflammation of the spinal cord. It is characterized by symptoms and signs of neurologic dysfunction in motor and sensory tracts on both sides of the spinal cord.  The involvement of motor and sensory control pathways frequently produce altered sensation, weakness and sometimes urinary or bowel dysfunction. In relation to MOGAD, the inflammation is caused by the MOG Antibody. Association (TMA). Julia, Kristina Lefelar, Cynthia Albright, and Amy Ednie banded together to establish The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project under the SRNA’s umbrella. This was the first presence of MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   represented under a nonprofit organization to provide support, education, and a community for MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   patients. The SRNA generously shared their resources with The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project and provided an online platform with accurate disease information for MOG-AD patients. We are excited to officially continue our partnership with the SRNA to expand our advocacy efforts, ensure that our resources are consistent, and enhance both of our overall missions. Julia Lefelar comments, “We have been blessed to be able to work with SRNA and through our common efforts have made significant progress in providing the best information to the MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   community. We are thankful for our strong and lasting relationship and are thrilled to continue working with such a caring organization, which can certainly only make our work together better.”   Amy Ednie, President of The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project added, “Over the last 2 years, with the support of SRNA we have co-produced remarkable material for the MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   community. We are so pleased to officially become a partner and continue this relationship for the good of a global and growing group of patients and caregivers. In partnership, we can better provide hope for a growing community navigating a new frontier in neuroimmuneA term that refers to the components of the immune system that acts in and affects the central nervous system. disorders.”   Sandy Siegel, the President of SRNA, remarked, “We are grateful for the partnership with The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project. Our hope is that by working together we can improve the quality of life for those in our community who have MOG antibody diseaseOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease  .” To learn more about the SRNA, please click here. Kristina Lefelar | Media Relations | info@mogproject.org

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