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MOGAD Awareness Month 2025

MOGAD Awareness Month is here! We have some great things happening this year along with an amazing International MOGAD Patient Summit!

To launch our inaugural MOGAD Patient Summit, we went to 4 of our community members to create this heartwarming video to reflect what patients think about their experience, how The MOG Project has helped and their hope for the future for MOGAD patients globally.

This year we partnered with UCB to create this series of Infographics designed to empower you to manage your MOGAD like a Superhero!

A different infographic will be revealed as each week progresses!

We thank UCB for their assistance in creating these informative infographics!

In the video below, Executive Director Julia Lefelar talks about the start of The MOG Project and how they help patients as well as a little bit about this campaign.

Our Message This MOGAD Awareness Month: Knowledge is your Superpower!

What is MOGAD? MOGAD is a rare autoimmune disease that impairs the central nervous system. this results in a sudden onset of symptoms.often referred to as an attack, which may include: Eye pain, blurriness, cloudy vison, vision loss; muscle weakness, fatigue, paralysis, loss of limb function, difficulty walking; headaches, brain fog, speech impairment, confusion. There is an image of a superhero taking off.
What friends and family of patients with MOGAD need to know. MOGAD is considered an invisible disease with symptoms and severity fluctuating day-to-day. Whie they may not look sick, patients with MOGAD could be battling: Fatigue, Brain Fog, Pain, Anxiety or Depression. Knowledge is your superpower.
4 power moves to advocate for your MOGAD care. 1 get the right diagnosis and share your symptoms. It's vital to distinguish MOGAD from other disorders to receive appropriate care. Share all symptoms with your healthcare team, including how they impact your daily life. If you have bee diagnosed with another demyelinating disorder and treatments aren't effective, it could be time to reconsider your diagnosis.
2: Seek early intervention upon diagnosis and symptom attacks. This can help reduce the likelihood of further damage to the optic nerve/spinal cord/brain, additional attacks, and disability.
Ask Questions for shared decision-making. Feel empowered to ask your healthcare team questions, ensuring your disease management goals are met, and have the confidence to address your conderns.
Build your dream team and align care with your goals. A team of diverse healthcare providers, such as neurologists, physical therapists, neuro-ophthalmologists, and psychologists, may help symptoms return to baseline. Knowledge is your superpower.
Download the Full PDF Here