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MOGAD Patient Summit 2026

Promotional graphic for the MOGAD Patient Summit 2026, featuring event details, Baltimore cityscape, and organizational logos. Text highlights education, support, and community. Event is August 29-30, 2026, in Baltimore, MD.
Key Information

The MOGAD Patient Summit 2026 is a two-day patient conference hosted by The MOG Project in Baltimore, MD, bringing together patients, caregivers, researchers, and clinicians for two days of education, connection, and community!

This year’s Summit will feature leading experts in MOGAD from Johns Hopkins Medicine, alongside community advocates and patient voices. Together, we will share the latest research, explore care strategies, and strengthen the growing MOGAD community. The event is designed to empower patients and families with the latest knowledge while building connections across our community.

Update: Registration for the 2026 The MOGAD Patient Summit is now closed. More information soon to come about virtual access.

Take a look below at some highlights from our inaugural MOGAD Patient Summit at the Mayo Clinic last year!

MOGAD Patient Summit 2026 Dates & Times

Day 1: Saturday, August 29, 2026
Core Conference Programming: 11:00 AM – 4:00 PM
Celebratory Dinner at the Maryland Science Center: 6:00 PM – 9:00 PM

Day 2: Sunday, August 30, 2026
Core Conference Programming: 11:00 AM – 3:00 PM

WHAT TO EXPECT

  • Presentations from leading MOGAD experts and clinicians
  • Updates on clinical trials and research developments
  • Sessions focused on patient experience, quality of life, and care pathways
  • Opportunities to connect with other patients, families, and advocates
  • Interactive discussions, breakout sessions, and working groups
  • A Kids Zone to welcome the whole family, with dedicated sessions for children and caregivers

MOGAD Patient Summit 2026 Location

A brightly lit waterfront with docked yachts and boats at dusk, in front of the illuminated Royal Sonesta hotel building, adorned with signage for the MOGAD Patient Summit 2026, city lights shimmering on the calm harbor.

The Royal Sonesta Baltimore Harbor Court
550 Light Street
Baltimore, MD 21202

The MOGAD Patient Summit 2026 sessions will take place at The Royal Sonesta, located in the heart of Baltimore’s Inner Harbor.

The MOG Project has conveniently reserved a block of rooms for conference attendees at The Royal Sonesta.

Currently, the following room types remain available within our block. We’re also pleased to share that the hotel has just added an additional room option for larger groups that was not available until recently:

 

• King Deluxe Room — $249/night plus taxes and fees

Perfect for 2-3 people. Features a king bed and approximately 420 square feet of space. Rooms include complimentary Wi-Fi, mini fridge, Keurig coffeemaker, and courtyard views.
Please note: This room type will only appear in the reservation system when searching for up to 2 guests. And if you have a third guest, please request a sleeper cot when booking.

 

• King Harborview Room — $377.50/night plus taxes and fees

This is currently the hotel’s largest available room type within our block. It features a king bed, queen-sized sleeper sofa that sleeps two additional guests, and panoramic Inner Harbor views.
Please note: Families and groups up to 5 people can typically be accommodated by requesting a sleeper cot for the fifth guest.

 

Children ages 17 and younger stay free with an adult or guardian.

 

If your family or group needs accommodations for more than 4 people, please reserve one of the currently available rooms now so you are secured within our hotel block, and then email us at events@mogproject.org to let us know your needs.

Make your reservation today!

We do not currently have travel grants allocated. If you have any questions, please email us at events@mogproject.org.

Family-friendly celebratory dinner

Maryland Science Center
601 Light Street
Baltimore, MD 21230

Join us for a special evening at the iconic Maryland Science Center overlooking Baltimore’s Inner Harbor. With interactive exhibits and a fun, kid-friendly setting, the Science Center offers something for attendees of all ages to enjoy.

Celebrate alongside the MOGAD community as we advance education, support research, raise awareness, and work toward a cure.

Evening highlights include:

  • Rooftop cocktail hour with beautiful Inner Harbor views
  • Interactive museum access for children and adults
  • Kid-friendly scavenger hunt throughout the Science Center
  • Prizes and surprises for participating families
  • Dinner and activities for all ages

Register below to join us for this incredible evening!

Travel Information

Baltimore/Washington International Airport (BWI) is the closest and most convenient airport for attendees traveling to the Summit, with only 11 miles to The Royal Sonesta.

The three most convenient ways to travel to The Royal Sonesta Harbor Court from BWI include:

  • Via Uber/Lyft or rental car, it’s a 15 minute drive.
  • The airport offers private taxis, though they are generally more expensive than Uber or Lyft.
  • With the light rail/metro at $2 per person, it’s a 27 minute ride to Camden Station and 11 minute walk from the metro to the hotel. The train runs every 30 minutes from the lower level of BWI, just outside of Door #19 and adjacent to Concourse E.

Additional airports include Ronald Reagan Washington National Airport (DCA) and Washington Dulles International Airport (IAD), both approximately an hour to an hour and a half away depending on traffic.

Parking at the conference

Please note that parking at The Royal Sonesta overnight is $28/night for self-parking and $50/night for valet parking. 

It costs $15 for day parkers and $35 for valet day parking.

There is not difference in parking fees for those who are staying at The Royal Sonesta or otherwise.

Hotel Availability

Due to a large national conference taking place in Baltimore the same weekend as the 2026 MOGAD Patient Summit, hotel availability throughout the city is limited. We strongly encourage attendees to reserve accommodations as soon as possible.

We secured a discounted room block at The Royal Sonesta Harbor Court, the same place our core conference is taking place. Reserve your room today! Please note that our hotel room block closes on August 7, 2026. 

If your family or group requires accommodations for more than four people, please reserve a room now and contact us at events@mogproject.org. Depending on availability, the hotel may be able to provide a sleeper cot, and we are working with the hotel to assess demand for additional larger-room options.

We also have a room block at the Baltimore Marriott Waterfront hotel, which is approximately a 10-minute drive from the Royal Sonesta. There are three different room types available, all of which can room up to four people.

Please note: We do not currently have travel grants available for the 2026 Summit.

Who Should Attend

  • Individuals living with MOGAD
  • Caregivers and family members
  • Healthcare professionals and researchers
  • Advocates and community leaders

Registration is Closed

We received an overwhelming response from our community and we are now at capacity. Registration for the 2026 U.S. MOGAD Patient Summit is now closed.

We will soon provide details about how to access the event virtually if you were unable to register for our in-person program.

For questions, reach out to us at events@mogproject.org.

Special thanks to UCB for their support in making the MOGAD Patient Summit 2026 possible!