Questions to Ask Your Doctor about MOGAD
Patient Appointment Checklist
Living with Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD)Often referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease can involve many medical decisions. Because MOGADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease is rare and research is still evolving, patients and families often become important partners in their own care.
Preparing questions ahead of time can help you better understand your diagnosis, explore treatment options, and make informed decisions about your care.
To support these conversations, The MOG Project created two resources you can bring to your medical appointments, based around questions to ask your doctor about MOGADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease . One is a quick checklist for routine visits, while the other is a more detailed discussion guide with space for notes. Different tools may be helpful for different stages of your journey.
We recommend reviewing the questions in advance and highlighting or selecting the ones most important to you, as you may not have time to cover every question during your appointment.
Download the resources
Click the button above for a short list of essential questions to help guide conversations during a typical medical appointment. It includes key questions about diagnosis, treatment, and emergency planning.
Best for:
- Routine visits
- Quick reference during doctor visits
Click the button above for a more comprehensive resource with expanded questions and space to record answers.
Best for:
- Newly diagnosed
- Follow-up appointments
- Preparing for a specialist visit
- Discussing treatment decisions
- Planning long-term care
When to use these resources
This checklist can be helpful if you:
- Recently received a Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD)Often referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease diagnosis
- Are preparing for an appointment with a neurologist or specialist
- Want to better understand treatment options
- Are experiencing new or worsening symptoms
- Are seeking a second opinion
- Are preparing for a follow-up visit
You do not need to ask every question. Choose the ones that feel most relevant for your situation.
To get the most out of your visit, consider bringing:
- This checklist or discussion guide (printed or on your phone)
- A list of your current mediations and dosages
- MRIA noninvasive imaging technique that uses strong magnetic fields to produce images of nearly any structure of the body. For MOGAD, it is typically used with and without contrast to identify disease activity in the central nervous system. or test results (if available)
- A notebook or phone to take notes
- A family member, friend, or caregiver for support
TIP: Many patients find it helpful to ask their most important 1-3 questions first, as appointment times may be limited.
Why Asking Questions Matters
MOGADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease is a rare neurological disease, and many patients see several healthcare providers as part of their care. Asking questions can help ensure that you understand your diagnosis, your treatment plan, and the steps you can take to protect your long-term health.
Bringing prepared questions can also help you make the most of limited appointment time and ensure that important topics are not overlooked.
Patient tips
Many people living with MOGAD find it helpful to bring written questions to their appointments. It can also be helpful to highlight or circle your top questions ahead of time so you can prioritize them during your visit.
Because doctor visits can feel rushed, having a checklist ensures you don’t forget the questions that matter most to you. Some patients also bring a family member or caregiver to help them take notes during the appointment.
Additional Resources
You may also find these resources helpful:
- Support groups for people living with MOGADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease
- Educational videos and podcasts
- Patient stories
- Information about clinical trials and resources
- Symptom tracking tools (available in our MOGADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease Learning Center)
- Patient ID Card