Skip to content

Events

Event

MOG Awareness Month is April 2022!

We are so excited to offer our community of tenacious hummingbird warriors their very own. month! This April, in partnership with The Siegel Rare Neuroimmune Association (SRNA), The Sumaira Foundation, The Guthy-Jackson Charitable Foundation and MyMyelitis, The MOG Project will celebrate the first-ever MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Awareness Month, meant to bring awareness to and encourage people to get tested for MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease  . https://youtu.be/QvY_DFegMQg We have some great events planned so make sure you keep connected to us onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. our social media and YouTube Channel, which you can find onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. our Connect page. MOG Awareness Month Events A brand new MOGCast! Join us onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. Wednesday, April 13th, 2022 at 10AM AEDT (That’s April 12th at 7PM EDT for those in the eastern US) for another in our MOGCast series! This MOGCast, stars the Australian Dream Team from our Medical Advisory Board, Dr. Darshi Ramanathan, Dr. Russel Dale and Dr. Fabienne Brilot-Turville.  Co-moderated by our own Australian Ambassador, Jenny Khazen and Executive Director Julia Lefelar, we take a deep dive into MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   Diagnosis, Management and Outcomes using the insight of these dedicated researchers. We have created a public Facebook Event which all can access and Facebook users can participate in to ask questions during MOGCast.  Access the Facebook Event here. Special Support Group Guest Appearance by Dr. May Han! Dr. May Han will be coming to a special “MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Sloggers, FInding our Way Together” Support Group onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. Saturday, April 23rd at 10am PST. All are welcome to join. You must register for this private event, so visit our Support Group page here. GReat Videos Coming soon to our YouTube Channel so stay tuned! Social Media Activities and Ways to Spread Awareness Do you follow us onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. Facebook, Instagram or Twitter?  We have several things you can do to spread awareness: Join our Rock Your Shades Challenge and show your support for MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   by posting a picture of you in your most awesome shades.  Find more details onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. our “Rock your Shades” Event Page.   2. Add our MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Awareness Frame to your profile picture!  You can add it yourself using your own photo editing tool or send us your picture to info@mogproject.org and we will do it for you!  Get the frame image here!. 3. Put up flyers around your local coffee shop, hospital, doctors office, gym or anywhere where flyers are permitted to spread awareness to your community! Get the Flyer Here 4. Check out our community pictures onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. Instagram and Facebook and see how members of our community live their lives the best way they can despite a rare disease diagnosis of MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease  !  We will post one every day and add them to this page below for all to see starting April 2nd! 5. Don’t forget to follow us onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. Facebook, Instagram and Twitter for posts of our great resources, stories and more from our partners.  We’ve got a FULL MONTH OF MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths.! Lighting up Niagra Falls! OnInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. behalf of the Niagara Falls Illumination Board, we are honored to be accepted as an organization represented by a special color illumination onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. April 30, 2022, to recognize MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Awareness Month! The Falls will be illuminated Teal, Red, Red and Teal at 10:00p.m. for a 15 minute duration. Please note that all Illumination times are approximate and subject to change according to light conditions. Here is a live cam link where you can watch the illumination event: https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str 

Read More »
Event with MOG Awareness Month Rock Your Shades Challenge Sticker Attached

MOG Antibody Disease Awareness Month Rock Your Shades Challenge

The entire month of April 2022! Join the Challenge for MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Awareness Month this April 2022! This April, in partnership with The Siegel Rare Neuroimmune Association (SRNA), The Sumaira Foundation, The Guthy-Jackson Charitable Foundation and MyMyelitis, The MOG Project will launch the first-ever MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Awareness Month, meant to bring awareness to and encourage people to get tested for MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease  . The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project invites you to participate in the “Eyes onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths.” social media photo challenge to be shared onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. personal and professional accounts as users deem appropriate. A key symptom of MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   is optic neuritisInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement., a condition that affects the eyes and vision. To show your support of those living with and affected by MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease  , post a photo of you and/or your family/friends rocking your favorite pair of sunglasses and keep up the “MOGmentum” by tagging your friends to do the same. To make participation as simple as possible, see the below guides to posting onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. Facebook and Instagram, suggested caption language and relevant hashtags to post. The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project will be posting onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. Facebook and Instagram, but we invite you to post onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. any platform of your choice and encourage you to share to your story onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. any platform. We’ve included a MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Awareness Month sticker that can be used onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. your story post, please see resources below to incorporate the sticker. The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project would not be what it is today without our growing network and support system. We truly value each and every one of you. Thank you for your support and we sincerely hope you will join us onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. social media to kick off the first ever MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Awareness Month in April. It’s easy to do! Here’s what you need: Create your photo like one of these below. Be creative! Pick your social media platform and use one of the appropriate captions below. Don’t forget to tag three friends! Facebook I’ve got my eyes onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. and this April, I want you to rock your shades for MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Awareness Month! MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   is a rare neuroimmuneA term that refers to the components of the immune system that acts in and affects the central nervous system. disorder that can attack the eyes, spinal cord and brain. To learn more visit: https://mogproject.org/2022/04/mog-awareness-month-is-april-2022/. Copy this caption, tagging 3 of your friends, post a picture of you rocking your shades and include it to spread the word and keep up the MOGmentum! [Tag friend] [Tag friend] [Tag friend], show me your shades! #MOGawarenessmonth #MOGmentum #raredisease #nonprofits #MOGADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   #MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Instagram I’ve got my eyes onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. and this April, I want you to rock your shades for MOGA type

Read More »
Event

Wings of Hope Support Group Meeting for Parents of Children with MOG-AD

We are proud to offer MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   Support Groups to the MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease   Community! Come and join the flock! Brian and Dawn Groves will be sponsoring our first meeting onInflammation of the optic nerve that may be classified as unilateral (affecting one eye) or bilateral (affecting both eyes) that may result in vision changes, vision loss, and/or pain with eye movement. January 24th, 2021, which we are calling the Lil’ Hummingbird Nest. We are planning more meetings for the near future and plan to open meetings for other groups. If you would like to volunteer to start a support group, please let us know by emailing us at info@mogproject.org! You must register for this meeting ahead of time. When: Jan 24, 2021 04:00 PM Eastern Time (US and Canada) These meetings are held through Zoom, so you must register in advance before the meeting: REGISTER HERE After registering, you will receive a confirmation email containing information about joining the meeting. Hope to see you there!

Read More »