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The MOG Project’s Co-Founder and Executive Director Appears in the Washington Post Medical Mysteries Column

The MOG Project is in the news!  In December of 2021, Julia Lefelar, Co-Founder and Executive Director of The MOG Project, met with Sandra Boodman, Medical Mysteries columnist at the The Washington Post to learn more about Julia’s long journey to a diagnosis of MOG-AD. Sandra Boodman also talked with Dr. Michael Levy, one of our medical board advisors who made the diagnosis for Julia. The result was the story of a 17-year journey to finding out what was ailing her.  This is the story behind the motivation for The MOG Project.  We are thrilled and grateful for the awareness that a prestigious media outlet like The Washington Post brings to MOG-AD and hope that this story reaches those who need it most; telling them that we are here and we all, as a community, care about what they are going through.  Please read Sandra Boodman’s story by following the link to the Washington Post’s Medical Mysteries Column.

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The MOG Project makes an Appearance on NBC4 Washington DC

Thanks to the help of Kimball Hughes Public Relations, The MOG Project got a spot on NBC4 Washington, a local news station serving the Washington DC metro area.  Our recent auction of a Buffalo Trace Distillery gift of a barrel and VIP experience of their popular Blanton’s bourbon whiskey piqued their interest. So they decided to pay us a visit over zoom to speak with our Executive Director and Co-Founder, Julia Lefelar.  We are so thankful for their interest in us and for taking the time to report on our auction, bringing awareness to this rare disorder! Watch both airings below: https://youtu.be/1aFt4O64qD0https://youtu.be/Kik005jW1M0 The auction was done by Unicorn Auctions, an online auction platform for rare spirits.  The auction was supposed to top at $35,000, but when generous bidders stepped in to pull their resources together, the end result was a final bid of $51,600!  The winners who want to remain anonymous, told The MOG Project that they were very happy to pair their love of bourbon with such a great cause.  We, of course, were so grateful for their generosity, giving our mission the lift-off it needs to really affect research in MOG-AD.

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Rare Whiskey for Rare Disease

We are thrilled to announce that The MOG Project is in the NEWS! Kimball Hughes Public Relations has put out a great article on our recent auction, hosted by Unicorn Auctions our of Chicago for a visit and tasting experience to the famous and historic Buffalo Trace Distillery in Frankfort, Kentucky.  The winner will be able to choose a huge barrel of their Blanton’s Single Barrel bourbon whiskey.  Read the full story here: Charity Auction Aims to Put MOG-AD Disease Over a Barrel

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MOG Squad Members Recognized by the Siegel Rare Neuroimmune Association

Congratulations to our 2019 MOG Squad members of the The MOG Project as 2019 Distinguished Service Award recipients presented at this year’s SRNA Rare Neuroimmune Disorders Symposium. Congratulations to Julie Lefelar, Peter Fontanez, Andrea Mitchell and Cynthia Albright for their work in leading nation-wide support groups (CA, FL and DC), Walk-Run-and-Roll events (MD and DC), publication of many informational materials and much more. You can read the full blog article entitled, The 2019 SRNA Distinguished Service Award Recipients, available on the SRNA website. Because we are an ‘all for one and one for all’ team, the recipients wanted to recognize the 2019 team members who made this honor possible. Congratulations for your contribution to this honor! Amy Ednie, Kristina Lefelar, Pamela Fontanez, James Mitchell, Jennifer Gould, Diana Lash, and Chelsea Ednie. Our team works hard to make an impact as advocates of MOG-AD rare neuroimmune disease and further our mission. Our awesome team is highly motivated, dedicated, passionate and brings a wealth of talent to our cause and we are forever grateful to them. In 2020, we have grown with new members passionate about making a difference, establishing key partnerships, developing professional relationships, raising funds, and producing MOGnificent educational materials with more on the way. Way to go team!

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