Skip to content

Propulsion Survey #1: Patient Pathway Disease Onset to Diagnosis

The MOG Project is pleased to share results from our first Propulsion Survey! This survey was created in collaboration with Dr. Jonathan Santoro, Dr. Jackie Palace and UCB Biopharma. In this survey, twenty-three multiple-choice and free-text questions were distributed by The MOG Project to our patient network via an online survey. There were 204 respondents and the results were incredibly insightful into what patients go through getting a diagnosis.  The resulting poster submission to ECTRIMS 2022 as well as the publication is available below.
 
It is important to note that due to recruiting methodology, this respondent pool may skew towards patients with more severe cases of MOGAD.

Publication

The paper was published by Springer and is available in Neurology and Therapy.  You can view the publication here and download it through the button below:

Download Publication PDF

ECTRIMS 2022: Post presentatioN

Below is the poster presented at ECTRIMS 2022 in Amsterdam, The Netherlands.  For a downloadable PDF, select the image.

Poster: Exploring the patient pathway from first symptoms to diagnosis: Results from an international survey of patients with myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD)