Propulsion Survey #1: Patient Pathway Disease Onset to Diagnosis
The MOG Project is pleased to share results from our first Propulsion Survey! This survey was created in collaboration with Dr. Jonathan Santoro, Dr. Jackie Palace and UCB Biopharma. In this survey, twenty-three multiple-choice and free-text questions were distributed by The MOG Project to our patient network via an online survey. There were 204 respondents and the results were incredibly insightful into what patients go through getting a diagnosis. The results were presented as a poster submission to ECTRIMS 2022 as well as the publication in Neurology and Therapy.
It is important to note that due to recruiting methodology, this respondent pool may skew towards patients with more severe cases of MOGAD.
What did we find out about Patient Experience Up to Diagnosis?
The infographic below shows in a summary of the findings of the study in an easily understood infographic produced by UCB Biopharma.
Publication
The paper was published by Springer and is available in Neurology and Therapy. You can view the publication here and download it through the button below:
ECTRIMS 2022: PostER presentatioN
Below is the poster presented at ECTRIMS 2022 in Amsterdam, The Netherlands. For a downloadable PDF, select the image.
