It took 13 appointments to get a neuro diagnosis
I’m going to start off my story, as not only an account about our experience with Isaac, but as an appeal to the medical community:
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Eliza’s Story: Weaving Emotional Support into the Fabric of Rare Disease Advocacy
Hello everyone, My name is Eliza, and at the age of 34, I was diagnosed with MOGADOften referred to as MOGADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease , Anti-MOG, MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Ab+, MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths.
Eliza’s Story: Our Health is the Goal
When I graduated eighth grade, I thought the greatest change of my life would be transitioning into high school. Little did I know what was
Deby’s Story: Strength Through Shadows
Living with MOGADOften referred to as MOGADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease , Anti-MOG, MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Ab+, MOG Antibody DiseaseOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease , MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Associated AntibodyA protective protein produced by your immune system that attaches to antigens (foreign substances), such as bacteria and toxins, and removes them from your body. In myelin oligodendrocyte glycoproten antibody disease (MOGAD), the body incorrectly produces an antibody that targets myelin oligodendrocyte glycoprotein, a component of the myelin sheath in the central nervous system. Disease, MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. positive disease as an adult has
Pooja’s Story: I Am A Warrior
Hello, I am Pooja Bhagchandani, and this is my story I want to share with you. I was born onInflammation of the optic nerveThe cranial nerves that relay messages from your eyes to your brain to create visual images. These nerves extend from the retina in the back of the eyes to the part of the brain that processes what we see. In myelin oligodendrocyte glycoproten antibody disease (MOGAD), they may be the target of inflammation or lesions, sometimes causing visual disruption or blindness. that
Tim’s Story: Perseverance Through Uncertainty
In February 2023, my life took an unexpected turn. I woke up, only to realize that I couldn’t stand or walk. The sudden loss of