In the summer of 2018, my vision started to go blurry in one eye, the eye doctor told me it was optic neuritis. The neurologist then had me do a spinal tap and a MRI on my brain, which both came back normal. Then the second eye started going, so they had me do steroid injections for a week.
After about 2-3 months things just started to get better and everything came back fine, so I just stopped worrying about it.
Then in December of 2020, it started happening again in one eye. The neurologist rushed an MRI and once again it came back normal, so she told me I just had migraines affecting my vision and that it was never even optic neuritis, and I went about life again once it went back to normal.
But when it started happening again the summer of 2023, I decided to go to a different neurologist. They did a MRI again of my brain and once again everything came back normal, but this time I wanted answers. So they sent me to a Neuro-ophthalmologist, and after a year of insurance not approving my blood work they finally sent me to an MS specialist who ordered an MRI of my brain and spine and the blood work again.
My MRIs came back normal, once again, but my blood work showed that I am positive for MOG antibodies. If I hadn’t changed doctors or advocated for a diagnosis, things would have certainly turned out differently.
By Alexandra
