The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project is thrilled to announce our partnership with The Siegel Rare NeuroimmuneA term that refers to the components of the immune system that acts in and affects the central nervous system. Association (SRNA) to advance our shared mission in supporting the MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease community and expanding our knowledge of alike neuroimmuneA term that refers to the components of the immune system that acts in and affects the central nervous system. disorders.
In December of 2017, Julia Lefelar, Executive Director of The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project, was suggested by her neurologist, Dr. Michael Levy, MD, PhD, then affiliated with Johns Hopkins University, to join the Siegel Rare NeuroimmuneA term that refers to the components of the immune system that acts in and affects the central nervous system. Association (SRNA) formerly the Transverse MyelitisA disorder caused by inflammation of the spinal cord. It is characterized by symptoms and signs of neurologic dysfunction in motor and sensory tracts on both sides of the spinal cord. The involvement of motor and sensory control pathways frequently produce altered sensation, weakness and sometimes urinary or bowel dysfunction. In relation to MOGAD, the inflammation is caused by the MOG Antibody. Association (TMA). Julia, Kristina Lefelar, Cynthia Albright, and Amy Ednie banded together to establish The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project under the SRNA’s umbrella. This was the first presence of MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease represented under a nonprofit organization to provide support, education, and a community for MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease patients. The SRNA generously shared their resources with The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project and provided an online platform with accurate disease information for MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease patients. We are excited to officially continue our partnership with the SRNA to expand our advocacy efforts, ensure that our resources are consistent, and enhance both of our overall missions.
Julia Lefelar comments, “We have been blessed to be able to work with SRNA and through our common efforts have made significant progress in providing the best information to the MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease community. We are thankful for our strong and lasting relationship and are thrilled to continue working with such a caring organization, which can certainly only make our work together better.”
Amy Ednie, President of The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project added, “Over the last 2 years, with the support of SRNA we have co-produced remarkable material for the MOG-ADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease community. We are so pleased to officially become a partner and continue this relationship for the good of a global and growing group of patients and caregivers. In partnership, we can better provide hope for a growing community navigating a new frontier in neuroimmuneA term that refers to the components of the immune system that acts in and affects the central nervous system. disorders.”
Sandy Siegel, the President of SRNA, remarked, “We are grateful for the partnership with The MOGA type of protein involved in cell adhesion. Present throughout myelin sheaths. Project. Our hope is that by working together we can improve the quality of life for those in our community who have MOG antibody diseaseOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease .”
To learn more about the SRNA, please click here.
