A temporary worsening of neurological symptoms related to a demyelinatingThe process in which the protective coating of nerve tissue (i.e. myelin) becomes damaged or breaks down, causing nerve impulses to slow or halt that results in neurological problems. disorder such as MSAn autoimmune disease that attacks healthy cells in the myelin, the protective sheath that surrounds nerves in the central nervous system (CNS) leading to neurological symptoms originating from the brain, spinal cord, and/or optic nerve., MOGADOften referred to as MOGAD, Anti-MOG, MOG Ab+, MOG Antibody Disease, MOG Associated Antibody Disease, MOG positive disease or NMOSDA disorder of the central nervous system that primarily affects the nerves of the eye and the spinal cord. Also known as Neuromyelitis Optica (NMO) or Devic's Disease when the body has prolonged exposure to excessive heat causing a rise in the body’s core temperature (e.g., from hot weather, exercise, fever, saunas, or hot tubs).
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My 14 year old daughter was diagnosed with Mogad a year ago. Finding reliable sources seems to be challenging when it comes to this disease. I am grateful for the few that there are. It’s so hard to watch my daughter explain her symptoms and how she feels with very little understanding from even her neurologists.